{"id":1112,"date":"2023-01-12T11:12:24","date_gmt":"2023-01-12T09:12:24","guid":{"rendered":"https:\/\/familysupport.org.za\/?page_id=1112"},"modified":"2026-03-11T16:59:12","modified_gmt":"2026-03-11T14:59:12","slug":"useful-websites","status":"publish","type":"page","link":"https:\/\/familysupport.org.za\/?page_id=1112","title":{"rendered":"Useful websites"},"content":{"rendered":"\t\t
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\t\t\t\t\t\t\t\tHome<\/span><\/span>\n\n\t\t\t\t<\/p><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Podcasts<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Brain Stories<\/span>\u00a0USA<\/span>
<\/b>brainstoriesproductions.com<\/a><\/p>

The Brain Stories<\/strong> podcast series captures the inside stories of those who live with mental illness and the people who support them. The producers, leaders of family mental health classes, aim to create awareness and caring in the mainstream culture, thus breaking down the walls of fear, alienation, and discrimination that those with mental health conditions face daily. \u00a0Recommended.<\/span><\/div>

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Schizophrenia: Three Moms in the Trenches<\/span>\u00a0USA<\/span>
<\/b>schizophrehia3momsinthetrenches.buzzsprout.com<\/a><\/p>

The podcast Schizophrenia: Three Moms in the Trenches<\/strong> <\/span>was launched in 2021 by three US mothers, Randye Kaye from Connecticut, Mindy Greiling from Minnesota, and Miriam Feldman from Washington State. All three have adult sons living with schizophrenia, and all three have written award-winning memoirs about their experience.<\/span><\/p>

With more than 125 episodes to choose from, the podcast offers professional and personal information and advice on a huge range of topics related to schizophrenia. Highly recommended.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Schizophrenia and psychosis websites<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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CURESZ Foundation<\/span>\u00a0USA<\/span>
<\/b>curesz.org<\/a><\/p>

C<\/strong>omprehensive U<\/strong>nderstanding via R<\/strong>esearch and E<\/strong>ducation into S<\/strong>chiZ<\/strong>ophrenia<\/p>

The CURESZ Foundation offers advocacy, information, advice, as well as educational and supportive resources to enhance the understanding of schizophrenia as a treatable neuropsychiatric illness. A well-organised and very informative website, focusing on helping people with schizophrenia recover.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Living with Schizophrenia UK
<\/b><\/span>livingwithschizophreniauk.org<\/a><\/p>

Living with schizophrenia provides a platform for those living with schizophrenia in the wider sense: sufferers, carers and relatives. Wide-ranging content written by people with lived experience. Useful information sheets on multiple topics.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Schizophrenia.com USA
<\/b><\/span>schizophrenia.com<\/a><\/p>

Schizophrenia.com is a web community dedicated to providing high quality information, support and education to family members, caregivers and individuals whose lives have been impacted by schizophrenia and in speeding the research progress towards a cure. Very busy website, and a bit chaotic, but lots of information.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Schizophrenia & Psychosis Action Alliance \u2013 S&PAA USA
<\/b><\/span>sczaction.org<\/a><\/p>

S&PAA\u2019s vision is to see schizophrenia and psychosis spectrum disorders universally recognised and treated as neurobiological brain illnesses. Awareness raising and activist organisation. Interesting content.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Schizophrenia Society of Canada \u2013 SSC
<\/b><\/span>www.schizophrenia.ca<\/a><\/p>

SSC\u2019s aim is to build a country where people living with early psychosis and schizophrenia achieve their potential. Focuses on advocacy and education. Informative site. Conveys a positive and supportive outlook. Good for families. Excellent publication Rays of Hope<\/a>, a reference manual for families and caregivers.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Team Daniel: Running for Recovery from Mental Illness USA
<\/b><\/span>www.teamdanielrunningforrecovery.org<\/a><\/p>

Team Daniel advocates for the controlled and supported early use of clozapine to treat people with \u00a0psychotic disorders, including schizophrenia.<\/p>

High level of involvement from founding physicians Drs Robert and Ann Mandel Laitman. International online participation is possible.<\/p>

Visit Past meetings<\/a> section of this website for recording and presentation of talk on clozapine and Team Daniel given at FSS October 2023 meeting.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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SMI and anosognosia websites<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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SMI and anosognosia\u00a0<\/span><\/span><\/b><\/p>

SMI<\/strong> (Serious or Severe Mental Illness) refers to a subset of mental illnesses that can cause serious functional impairment and limit major life activities. SMI can include schizophrenia spectrum disorders, severe bipolar disorder, and major depression with psychotic features.<\/p>

A common symptom of SMI is anosognosia<\/strong>, which is when someone is unable to understand that they are ill or why they need treatment.\u00a0<\/span><\/p>

The development of a trusting relationship using appropriate communication skills<\/strong> is a key success factor in persuading a person with anosognosia to accept treatment.<\/p>

Visit Past meetings<\/a> section of this website for recording and presentation of talk on anosognosia and recovery given at FSS March 2024 meeting.<\/p><\/div><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Leap Institute<\/span>\u00a0USA<\/span>
<\/b>www.leapinstitute.org<\/a><\/p>

The mission of LEAP Institute is to disseminate the LEAP <\/b>– L<\/b>isten E<\/b>mpathise A<\/b>gree P<\/b>artner -approach, a communication program originally designed to help build relationships with people who are unable to understand they are ill, with the goal of helping them accept treatment.\u00a0<\/p>

Though developed by Dr Xavier Amador as a way of reaching people suffering from \u00a0anosognosia, the LEAP program can be used to strengthen all kinds of relationships.<\/p>

See the\u00a0Useful publications<\/a> topic on the Resources page<\/a> for more about Dr Amador’s book\u00a0\u201cI AM NOT SICK – I don\u2019t need help!\u201d<\/b><\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Pathways Serious Mental Illness Society Canada
<\/b><\/span>pathwayssmi.org<\/a><\/p>

Pathways SMIS – Families Helping Families \u2013 aims to be a\u00a0centre of support, education, awareness and advocacy for\u00a0families and others affected by serious mental illness.\u00a0Informative family-oriented website, good resource library,\u00a0many online resources orientated to families.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Treatment Advocacy Center \u2013 TAC <\/span>USA<\/span>
<\/b>www.tac.org<\/a><\/p>

TAC\u2019s mission is to eliminate the barriers to timely and effective treatment of severe mental illness (SMI) through advocacy, public education, and support for individuals and families affected by SMI.<\/p>

Very useful website. Comprehensive sections on Understanding SMI and Resources & Research.<\/p>

Podcast series TAC SMI Spotlight<\/a> features Dr Xavier Amador and others talking about anosognosia, schizophrenia and SMI. Very worthwhile.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Mental health and brain research websites with sections on schizophrenia<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Mental Health Information Centre \u2013 MHIC
<\/b>www.mentalhealthsa.org.za<\/a><\/p>

The MHIC is part of the MRC Risk and Resilience in Mental\u00a0Disorders Research Unit, whose researchers at Stellenbosch,\u00a0Cape Town and North-West Universities focus mainly on\u00a0anxiety and stress disorders. The MHIC has the broader aim of\u00a0mental health education and awareness raising for mental\u00a0health professionals and the public. The section on\u00a0schizophrenia and other psychotic disorders is useful, although\u00a0some of the entries are rather old.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Mind UK
<\/b><\/span>www.mind.org.uk<\/a><\/p>

Mind UK provides advice and support to empower anyone experiencing a mental health problem, and campaigns to improve services, raise awareness and promote understanding. Excellent site. Very user friendly. Good sections on schizophrenia and antipsychotic medication.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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NHS UK<\/b><\/span><\/p>

www.nhs.uk<\/a><\/p>

The NHS is the UK’s publicly funded health service. Its website is a comprehensive and authoritative source of user-friendly information and advice. Excellent overview of schizophrenia<\/a>, its symptoms, causes, diagnosis and treatment, and practical tips on living with schizophrenia.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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NAMI USA
<\/b><\/span>www.nami.org<\/a><\/p>

NAMI, the National Alliance on Mental Illness was founded in 1979 as a small support group and has grown into the largest grassroots mental health organisation in the USA, with more than 600 branches. It was the inspiration for the formation of Cape Support for Mental Health in 1981. Excellent site. Good sections on family support and schizophrenia. Straightforward language and advice.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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World Health Organisation \u2013 WHO
<\/b><\/span>Mental health section<\/a><\/p>

WHO works with member states and partners to improve the\u00a0mental health of individuals and society at large. This includes\u00a0the promotion of mental well-being, the prevention of mental\u00a0disorders, and efforts to increase access to quality mental\u00a0health care that respects people\u2019s human rights. Comprehensive site. Authoritative information.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Brain & Behavior Research Foundation
<\/b><\/span>Schizophrenia research<\/a><\/p>

The Foundation funds the most innovative ideas in neuroscience and psychiatry to better understand the causes and develop new ways to treat brain and behaviour disorders, including schizophrenia. Webinars and online events are available, with presentations by leading researchers in their fields. Authoritative information.\u00a0\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Some other leading mental health websites and brain research websites<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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HelpGuide USA
<\/b><\/span>www.helpguide.org<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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verywell mind USA
<\/b><\/span>www.verywellmind.com<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tBack to topics<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Home Useful websites Podcasts Brain Stories\u00a0USAbrainstoriesproductions.com The Brain Stories podcast series captures the inside stories of those who live with mental illness and the people who support them. The producers, leaders of family mental health classes, aim to create awareness and caring in the mainstream culture, thus breaking down the walls of fear, alienation, and […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":377,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"give_campaign_id":0,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"footnotes":""},"class_list":["post-1112","page","type-page","status-publish","hentry"],"acf":[],"campaignId":"","_links":{"self":[{"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/pages\/1112","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/familysupport.org.za\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1112"}],"version-history":[{"count":80,"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/pages\/1112\/revisions"}],"predecessor-version":[{"id":6548,"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/pages\/1112\/revisions\/6548"}],"up":[{"embeddable":true,"href":"https:\/\/familysupport.org.za\/index.php?rest_route=\/wp\/v2\/pages\/377"}],"wp:attachment":[{"href":"https:\/\/familysupport.org.za\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1112"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}